Press Releases

For media inquiries, contact Carol Steinberg, Executive Vice President,
Alzheimer's Foundation of America 866.AFA.8484 | media@alzfdn.org

Current Press Releases

November 11 , 2011
FOR IMMEDIATE RELEASE

MORE THAN 40 LEADING ALZHEIMER’S ORGANIZATIONS CALL FOR
DRAMATIC NEW STRATEGY TO STOP ALZHEIMER’S DISEASE

WASHINGTON, DC – More than 40 of the nation’s leading voices and organizations in Alzheimer’s research, drug discovery and care today announced a series of aggressive and innovative recommendations to transform the current trajectory of Alzheimer’s disease, now slated to kill millions of Americans and to cost the nation over two trillion dollars in the coming decade. The recommendations by Leaders Engaged on Alzheimer’s Disease (LEAD) are directed to the Congressionally-mandated Advisory Council on Alzheimer’s Research, Care, and Services – the committee tasked with advising on the first-ever national action plan to deal with the growing Alzheimer’s disease crisis.

“Alzheimer's is a progressive neurodegenerative disease which is uniformly fatal and for which there are no effective treatments,” said Howard Fillit, MD, who is Executive Director of the Alzheimer’s Drug Discovery Foundation, which is a member of LEAD. “The Obama Administration has a unique opportunity to set the nation on a new course with Alzheimer’s disease. An entire generation of baby boomers will be turning 65 at the rate of 10,000 per day for the next 19 years, and we have no sustainable long-term answer for them to this disease epidemic. It cannot be emphasized enough that we are in a race against time to stop Alzheimer’s disease before it becomes America’s single largest public health, fiscal and economic threat.”

Alzheimer’s disease currently affects an estimated 5.1 million Americans and, absent disease-modifying treatments, that number is expected to rise exponentially in the coming decades. To significantly advance progress in Alzheimer’s research, care and prevention, experts who prepared the LEAD report propose the following vital recommendations:

Triple the amount of funding for Alzheimer’s disease research, while reducing the current duplication of research efforts as well as spurring innovation through a new outcomes-oriented research strategy.

Create incentives to drive investment in new Alzheimer’s disease therapies through enhanced market exclusivity for companies delivering treatments to market, development of large-scale patient registries to reduce the time and cost of recruiting thousands of individuals to clinical trials, and focusing attention on the development of qualified biomarkers to shorten the time needed to assess the effectiveness of new drug candidates.

Reduce healthcare costs and improve quality of care for people with Alzheimer’s disease by implementing at a national level proven models of caring for individuals with the brain disorder and their caregivers, developing critical assistive tools and services for family caregivers, and adequately reimbursing healthcare professionals for improved high quality care.

Establish a dedicated fund at the U.S. Department of Health and Human Services (HHS) to invest with private investors in new start-up drug discovery companies that are developing innovative treatments and therapies with the best likelihood for reducing Medicare and Medicaid spending on Alzheimer’s disease care.

Prepare for the explosion in Alzheimer’s cases by building a healthcare workforce skilled in the care of people with the disease and by ensuring that adequate and effective services and support care are accessible to all families coping with the disease.

“The time is now for America to rally the nation behind the challenging but achievable goal of stopping this disease in the next decade,” said Dr. Rudy Tanzi, Joseph P. and Rose F. Kennedy Professor of Neurology, Harvard Medical School and Director of Harvard University’s Genetics and Aging Research Unit. “It is a bold goal, but it is doable, and only by setting a bold and inspiring goal will we be challenged to mobilize the best and the brightest in our nation to think 'out-of-the-box' to avoid the unimaginable costs of Alzheimer's to our nation and the millions of families personally affected by the disease.”

“Incremental steps and half measures are not enough to confront the growing Alzheimer’s crisis,” said George Vradenburg, Co-founder of USAgainstAlzheimer’s, a co-convenor of LEAD. “Instead, the Advisory Council should consider the daring directives outlined in this new report. From the day John Kennedy told America we would land on the moon, it took eight years for the Apollo 11 to touch down. With a transformational national plan, we could be on the verge of another giant leap for mankind.”

“This is a crisis situation that calls for a crisis-like response,” said Eric J. Hall, Founding President and CEO of the Alzheimer’s Foundation of America, a co-convenor of LEAD. “Families have borne the financial and emotional toll of this disease for far too long. Now is our once-in-a-lifetime chance to give them relief, and to relieve future generations from having the threat of this disease hanging over them.”

Development of an integrated national plan to defeat Alzheimer’s disease is mandated under the new National Alzheimer’s Project Act (NAPA), signed by President Obama early this year.

LEAD was founded in 2008 and includes nationally renowned experts, advocacy groups and others involved in the Alzheimer’s community. Participants in LEAD actively supported the passage of NAPA and are prepared to serve as a resource to the Advisory Council as it moves forward with its review of a strategic plan to defeat Alzheimer’s disease.

The entire report, including the recommendations of four working groups – addressing the areas of research, clinical care, long-term care support and services, and drug development – can be found here.

Contact: Carol Steinberg
Phone: 866-AFA-8484

September 28, 2011
FOR IMMEDIATE RELEASE

National Brain Game Challenge Winner Breaks Crossword Code in 43 Minutes
Other Winners Named in Unique Contest to Benefit Alzheimer’s Foundation of America

NEW YORK, NEW YORK--With an eye on a $5,000 top prize in a unique crossword contest to benefit the Alzheimer’s Foundation of America (AFA), Jeffrey Harris of Norwalk, CT today was named the first place winner in the National Brain Game Challenge.

After racing with intense speed and precision accuracy, it took Harris just 43 minutes to crack the intricate code—which turned out to be tied to the classic Gulliver’s Travels.

Michael Sylvia of Seattle grabbed second place, completing the puzzle just 10 minutes later, and Andrew Feist of Newport News, VA ranked third with his submission that came in 65 minutes after the contest began at 3 p.m. ET on September 25.

Ace crossword constructor Merl Reagle, whose Sunday crossroads appear in more than 50 newspapers nationwide, had promised players a “full-body mental workout,” with clues that were buried three levels deep. As soon as participants downloaded the four crosswords in the contest, they were faced with puzzles of unusual shapes and word twists.

Excited to hear the news of his win, Harris, a 26-year-old crossword buff and tournament competitor, said, “I really enjoyed [the puzzles]! Very entertaining, and full of great wordplay, as one would expect from Merl.”

AFA sponsored the National Brain Game Challenge to creatively call attention to the rising incidence of Alzheimer’s disease and to promote successful aging, while raising funds to supports its vital programs and services nationwide. The contest aligns with research that suggests that crossword puzzles and other mental activities are good for brain health.

Reagle, who spent months crafting the puzzles, chose Gulliver’s Travels as the theme because of author Jonathan Swift’s ties to dementia. He noted that when Swift died in 1745, he left the bulk of his estate, 12,000 pounds, to found a hospital for people with mental illness

Providing a look behind the crosswords, Reagle explained that his main chore in creating the puzzles was to “first, slow everyone down with a complex series of things to find, and second, to try to keep everyone on the same racetrack.”

“I knew going in that there were some very fast people playing, but I wanted to make sure that if there were ways to leap ahead, that the slower solvers could see them, too,” he said.

The puzzles ultimately led to four key answers that had a secret link in common. With the secret link turning out to be “Gulliver’s Travels,” the four key answers corresponded to the four parts of the book -- Randy Newman’s “Short People” indicated the Lilliputians; San Francisco’s “Giants” indicated the Brobdingnagians; “Scientists” indicated the impractical inhabitants of a floating island; and “Houyhnhnms” (pronounced “winnums”) were the intelligent horses of Part 4. Players sent their responses to a secret e-mail address revealed in one of the puzzles: gulliver@alzfdn.org.

Contestants called the National Brain Game Challenge “fun,” “exciting,” and “a blast.” Noted one participant: “Wow, what a great time that was. Took me five hours but I got there! Thanks for the crazy journey…or should I say ‘travels’?”

For Reagle, the contest fulfills a dream to both do an online puzzle contest and acknowledge the heroic role of caregivers. He and his wife, Marie Haley, of Tampa, FL were caregivers for “1,000 days” for Marie’s mother, who had Alzheimer’s disease.

Eric J. Hall, AFA’s president and CEO, said AFA couldn’t have asked for a better master behind the magic of the contest.

“Merl really delivered, showing off not only his genius, but also his passion for our cause—and really helped us raise awareness of Alzheimer’s disease and a place to turn for help,” Hall said.

Currently, Alzheimer’s disease, which results in loss of memory and other intellectual functions, affects as many as 5.1 million Americans. It’s the sixth leading cause of death in the United States, and its incidence is rising in line with the nation’s aging population. Advanced age is the biggest risk factor.

The Alzheimer’s Foundation of America, based in New York, is a national nonprofit organization that unites more than 1,600 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia, and to their caregivers and families. Its services include counseling and referrals by licensed social workers via a toll-free hot line, e-mail, Skype, and live chat; educational materials; a free quarterly magazine for caregivers; and professional training. For more information about AFA, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

Contact: Carol Steinberg
Phone: 866-AFA-8484

September 15, 2011
FOR IMMEDIATE RELEASE
Alzheimer’s Foundation of America Memory Screening Day Garners Widespread Support of Leading Professional Groups
November 15 Event Initiative Offers Education, Road to Diagnosis

NEW YORK, NY –In testament to the value of community-based memory screenings, the Alzheimer’s Foundation of America (AFA) today announced that more than 30 leading professional organizations are supporting its annual National Memory Screening Day that will be held this year on November 15.

The announcement comes on the heels of a report released earlier this week by Alzheimer’s Disease International that found that “perhaps as many as 28 million of the world’s 36 million people with dementia have yet to receive a diagnosis, and therefore do not have access to treatment, information, and care.”

Coinciding with National Alzheimer’s Disease Awareness Month in November, AFA’s National Memory Screening Day offers free, confidential memory screenings and is aimed at promoting early detection of memory problems and appropriate intervention.

The results of the face-to-face screening, which consists of a series of questions and tasks, do not represent a diagnosis, and screeners encourage those with abnormal scores as well as those who still have concerns to pursue a full medical exam.

Supporters of this year’s event include the American Academy of Neurology, the American Academy of Nurse Practitioners, the American Association for Geriatric Psychiatry, the American Geriatrics Society, the American Pharmacists Association, Catholic Health Association of the United States, National Association of Area Agencies on Aging, and the National Council on Aging, as well as organizations that represent other degreed professionals, direct care employees, family caregivers and long-term care organizations. For a complete list, visit www.national memoryscreening.org.

“Memory screenings are a valuable way to begin a conversation about cognitive health and start on the path toward proper diagnosis,” said Eric J. Hall, AFA’s president and CEO. “We must remove barriers now. Too many cases of Alzheimer’s disease are left undetected, especially since treatments and support services can influence quality of life for countless families.”

A 2009 article in the American Journal of Geriatric Psychiatry found that general practitioners miss about half of dementia cases.

Further, an AFA report, “Memory Matters,” noted that there is ample evidence that screening can improve case identification. “Screening is a safe, cost-effective intervention that can reassure the healthy individual, promotes successful aging and, when indicated, directs individuals to appropriate clinical resources,” it said.

AFA surveys of past National Memory Screening Day participants have revealed that a large percentage had memory concerns but had not expressed them to healthcare professionals despite recent visits.

Last November, during the event, qualified healthcare professionals at approximately 2,300 sites nationwide gave screenings and educational materials to an estimated 60,000 Americans, and they provided educational materials about memory concerns, successful aging and resources to another 25,000 individuals who came in only to pick up information. Sites span all 50 states and include pharmacies, senior centers, Ys, houses of worship, assisted living facilities and doctor’s offices .

AFA encourages adults with memory concerns, a family history of Alzheimer’s disease or a desire to see how their memory is now and for future comparison to get screened.

Follow up with a clinician may reveal that the person’s memory problems stem from a reversible condition such as a vitamin deficiency or thyroid problem, or from an irreversible disorder like Alzheimer’s disease.

Early identification of Alzheimer’s disease or a related dementia allows affected individuals and their family members to benefit from available treatments that can help slow progression of symptoms, as well as to plan for the future and access social services support.

It is estimated that as many as five million Americans have Alzheimer’s disease, which causes loss of memory and other intellectual functions, and the incidence is expected to triple by mid-century in line with the nation’s aging population. Advanced age is the greatest risk factor.

Warning signs of Alzheimer’s disease: forgetting people’s names and events, asking repetitive questions, loss of verbal or written skills, and confusion over daily routines.

For information about National Memory Screening Day, including screening locations and how to sign up as a site, visit www.nationalmemoryscreening.org or call 866-AFA-8484.

Event sponsors are: Senior Helpers, as silver sponsor; and Accera Inc., Eli Lilly and Company, and Novartis, as remembrance sponsors.

The Alzheimer’s Foundation of America, based in New York, is a national nonprofit organization that unites more than 1,600 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia, and to their caregivers and families. Its services include counseling and referrals by licensed social workers via a toll-free hot line, e-mail, Skype and live chat; educational materials; a free quarterly magazine for caregivers; and professional training. For more information about AFA, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

Contact: Carol Steinberg
Phone: 866-AFA-8484 AFA-8484 or visit www.alzfdn.org.

September 7 , 2011
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Seeks Input on National Plan to Beat Brain Disorder
Public Invited to Join September 12 National Conference Call

NEW YORK, NY—As experts begin to craft a national strategy to defeat Alzheimer’s disease, Christopher Nadeau, executive director of the New York Memory Center in Brooklyn, NY, strongly believes that a plan must include funding for local providers to adopt best practices in caregiving from across the country as well as provide care planning to families so they “can get in front of the disease as opposed to putting out fires.”

Nadeau’s comments will be among those that Eric J. Hall, founding president and CEO of the Alzheimer’s Foundation of America (AFA), delivers to government and industry leaders as part of AFA’s input into the development of a national Alzheimer’s disease plan mandated by the National Alzheimer’s Disease Project Act.

Hall has been collecting feedback from the public and AFA’s 1,600 member organizations, like Nadeau of New York Memory Center, for several months via phone and e-mail.

He will hold another national conference call on September 12 at 3 p.m. (ET).

The upcoming “listening session” is the first since Hall was appointed last month by the U.S. Secretary of Health and Human Services to sit on the National Advisory Council on Research, Care and Services.

To participate on September 12, call (toll-free) 888-324-9356 and enter pass code 4475639#. Participants are asked to RSVP by 10 a.m. that day to saustin@alzfdn.org.

For this call, Hall is asking the public and AFA member organizations to focus on clinical care, research, long-term care and drug development. For example, he seeks input on increased funding for research and drug development and how doctors can more effectively diagnose the brain disorder.

“One of the best ways to tackle this escalating public health crisis is to listen to ideas from folks who have their ears to the ground and know the day-to-day needs of families in the throes of Alzheimer’s disease,” Hall said. “It’s our obligation to do right by these families. I intend to seize this opportunity to represent the growing number of Americans who are relying on the public and private sector for care and cure.”

In order to provide the most expansive input from all stakeholders, Hall is also assembling experts in various fields to consult with on an ongoing basis. Experts include renowned members of the research community.

Hall is among 12 federal and 12 non-federal designees who HHS Secretary Kathleen Sebelius named to the advisory council. They are tasked with providing input into the National Alzheimer’s Project, which will coordinate government efforts to prevent and treat the disease as well as create a national strategy for defeating the brain disorder.

The National Alzheimer’s Project Act was passed by Congress in December 2010 and signed into law by President Obama in January 2011.

The advisory council will provide an initial evaluation of all federally funded efforts in Alzheimer’s disease research, clinical care, and long-term services and supports and their outcomes; recommendations for priority actions to expand, eliminate, coordinate or condense programs; recommendations to reduce the financial impact of Alzheimer’s disease on Medicare and other federally funded programs as well as on the families living with Alzheimer’s disease; and recommendations to improve health outcomes.

Alzheimer’s disease, which results in loss of memory and other intellectual functions, currently affects more than 5.1 million Americans and is the sixth leading cause of death. With advanced age the greatest risk factor for the disease, the incidence is expected to triple by mid-century in line with the nation’s aging population.

The Alzheimer’s Foundation of America, based in New York, is a national nonprofit organization that unites more than 1,600 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia, and to their caregivers and families. Its services include counseling by licensed social workers via a toll-free hot line and Skype, educational materials, a free quarterly magazine for caregivers, National Memory Screening Day and professional training. For more information about AFA, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

August 7 , 2011
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America to Host Online Puzzle Competition
Renowned Puzzle Master Lends His Expertise to the Cause

NEW YORK, NEW YORK—The Alzheimer’s Foundation of America (AFA) is calling on crossword buffs, novices up for a challenge and others in between to participate in its inaugural National Brain Game Challenge, an online game of skill created by one of the nation’s most admired puzzle masters.

For the National Brain Game Challenge, Merl Reagle, whose popular Sunday crossword is syndicated in 50 newspapers across the country, has crafted a series of challenging, fresh-themed puzzles that lead to a single solution.

Players pay a $25 registration fee, which will give them online access to the puzzles on September 25 at exactly 3 p.m. ET. The contest ends September 27, and AFA will announce the winners the following day. Up for grabs: a $5,000 grand prize and other prizes. To register and for more information, visit www.alzfdn.org.

The educational and fundraising event is aimed at boosting awareness of lifestyle choices that promote brain health; alerting the public about AFA as a resource for support services and information about memory concerns, successful aging and caregiving; and raising funds for AFA’s programs and services nationwide.

It stems from research that suggests that regular mental workouts may help reduce the risk of Alzheimer’s disease—an incurable brain disorder that is increasing in incidence nationwide and primarily affects the older population.

“The human brain thrives within an enriched environment filled with novel and complex stimuli. Mental stimulation in the form of crossword puzzles, language development, travel, visits to the museum, etc. has been found to enhance the health of the brain through the development of ‘brain reserve,’” said Paul Nussbaum, Ph.D., chairman of AFA’s Prevention Advisory Board and a brain health expert whose latest book is entitled “Save Your Brain.”

Reagle and his wife, Marie Haley, of Tampa, FL have a personal interest in the cause, having been caregivers for “1,000 days” for Marie’s mother, who had Alzheimer’s disease.

“Alzheimer's disease is devastating to the people who have it, but it's especially tough on family caregivers, who are perennially overworked and underfunded. After seeing its impact close up, I've always wanted to do my share to benefit the cause directly, and I thank AFA for giving me that chance,” said Reagle, who co-starred in the hit documentary “Wordplay” and has been a character, playing himself, on “The Simpsons.”

Registration for the National Brain Game Challenge begins August 7, which coincides with the birthday of Marie’s mother.

Eric J. Hall, AFA’s president and CEO, said this exciting event “highlights the increasing reality of Alzheimer’s disease and the importance of adapting healthy lifestyles that may promote successful aging.”

“With the National Brain Game Challenge, we hope to replace fear with fun, and send the message that it’s never too early or too late to embrace brain health,” he said.

Under the rules of the National Brain Game Challenge, players must electronically submit their solutions to each puzzle plus a final answer to AFA. AFA will determine the grand prize winner, runners-up and additional winners based on accuracy and speed. Besides the $5,000 grand prize, AFA will award a $1,000 second prize; $500 third prize, and more than a dozen $100 prizes to a specific sequence of winners, including the 5,000 th person with the correct response.

The contest is open to individuals aged 18 and older, except any finalist or winner in the A and B Division playoffs of the American Crossword Puzzle Tournament and/or any person who ever constructed a playoff puzzle for the American Crossword Puzzle Tournament, as well as AFA employees and their immediate families.

Complementing this online challenge, in a pilot program initiated by AFA, various AFA member organizations around the country will be hosting their own Brain Game Challenge events in their communities from September 10 to 24. In general, each local event will involve visual puzzles, math challenges and memory games that can be played by participants of all ages, abilities and interests simultaneously.

Currently, Alzheimer’s disease, which results in loss of memory and other intellectual functions, affects as many as 5.1 million Americans and is the sixth leading cause of death in the United States. Advanced age is the greatest known risk factor.

Contact: Carol Steinberg
Phone: 866-AFA-8484

May 17 , 2011
FOR IMMEDIATE RELEASE

Alzheimer's Foundation of America Issues ‘Penny Wise, Pound Foolish’ Report Highlighting Government Funding Shortfall for Aging Research

NEW YORK, NY—As the nation prepares for a “silver tsunami,” a new report released today by the Alzheimer’s Foundation of America (AFA) highlights inadequate funding by the National Institute on Aging (NIA) for research of aging-related illnesses and issues a call for the needed investments aimed at preventing, treating or curing chronic diseases, including Alzheimer’s disease, that mostly affect older Americans.

The report, entitled “Penny Wise, Pound Foolish: Fairness and Funding at the National Institute on Aging,” sheds light on this shortfall as Americans in general are anxious about healthcare concerns and costs and as the nation’s at-risk older population is booming—in a silver tsunami fueled by aging baby boomers and a longevity revolution. The number of Americans aged 65 and older will double to more than 88.5 million by 2050.

“In stark contrast to the rapidly-rising costs of healthcare for the aging, we as a nation are making a miniscule—and declining—investment in the prevention, treatment or cure of aging conditions,” the report said. “Simply put, our nation does not have the luxury of time to address the health research needs of this population.”

Susan Peschin, AFA’s vice president of public policy and the report’s author, explained, “Increased investment in understanding, preventing, treating or curing chronic diseases of the aging, such as Alzheimer’s disease, is perhaps the single most effective strategy in reducing national spending on healthcare and extending healthy life. We cannot afford to wait until it’s too late to correct this widening gap.”

The report reiterates that chronic disease associated with aging accounts for more than 75 percent of Medicare and other federal health expenditures.

And yet, out of each dollar appropriated to the National Institute of Health (NIH), only 3.6 cents goes toward supporting the work of the NIA, one of the 27 institutes and centers of the NIH and the lead institute on Alzheimer’s disease research. Between fiscal years 2003 and 2010, scientists saw a series of nominal increases and cuts that amounted to a 14.7 percent reduction in constant dollars for the NIA.

“As the incidence of Alzheimer’s disease reaches crisis proportion, it is essential that researchers continue to work towards a breakthrough with this disease,” said Eric J. Hall, AFA’s president and CEO. “The costs of not supporting Alzheimer’s disease research will pose even more of a tremendous burden to families, businesses and government. Moreover, lives are depending on this type of investment.”

Alzheimer’s disease, which results in loss of memory and other intellectual functions, is the sixth leading cause of death in the United States.

AFA and 20 partnering organizations are seeking a minimum $1.4 billion, an increase of $300 million, in the fiscal year 2012 NIH budget for the NIA—a funding level that would be consistent with comparable federal research investments initiatives at the NIH and, they say, “the minimum essential to sustain the research needed to make progress in attacking the chronic diseases that are driving massive increases in our national healthcare cost.”

In the area of Alzheimer’s disease, research is estimated to be only $469 million at NIH alone; $332.4 million of the NIA’s $1.1 billion budget (30 percent) went to Alzheimer’s disease research in 2009.

One of the major downfalls of reduced NIA funding is the loss of a generation or more of promising researchers in aging and Alzheimer’s disease, according to the report.

It cites the November 11, 2010 issue of Nature in which Richard Hodes, M.D., director of the NIA, said, “If we are less able to fund research—or are perceived to be less able—that will actually drive young and emerging investigators to fields other than aging. That would be a catastrophe at a time when such research is critically important.”

In contrast, the report cites evidence from past medical research related to other illnesses, which have led to breakthroughs with a profound impact on not only reducing mortality and morbidity, but on cutting healthcare costs. The cost-effectiveness of the polio vaccine since 1955 in the United States is estimated at $180 billion, and the $10 billion invested in basic research in HIV/AIDS between 1985 and 1995 saved $1.4 trillion in healthcare costs, for example.

The Alzheimer’s Foundation of America, based in New York, is a national nonprofit organization that unites more than 1,600 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia, and to their caregivers and families. Its services include counseling by licensed social workers via a toll-free hot line and Skype, educational materials, a free quarterly magazine for caregivers, and professional training. For more information about AFA, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

April 4, 2011
FOR IMMEDIATE RELEASE

Hundreds of Alzheimer’s Researchers, Service Providers Call on Congress to Preserve Vital NIH Research Funding
Reducing the budgets of the National Institutes of Health and National Institute on Aging would be self-defeating, increasing government costs

WASHINGTON, D.C. – USAgainstAlzheimer’s and the Alzheimer’s Foundation of America , co-facilitators of Leaders Engaged on Alzheimer’s Disease (LEAD)—a coalition of Alzheimer’s-serving organizations dedicated to increasing America’s commitment to stop Alzheimer’s disease—issued the following statements today. The statements are being issued in light of a letter sent today to Congress, signed by more than 480 Alzheimer’s researchers and service providers, urging members to maintain Fiscal Year 2010 funding for the National Institutes of Health and the National Institute on Aging through the current fiscal year.

George Vradenburg, Co-Founder and Chairman of USAgainstAlzheimer’s
“Chopping NIH funding would defeat our national objective of reducing Medicare and Medicaid spending through innovative drugs and treatments. Preventing and curing what were at one time thought to be terminal diseases has been the largest single driver of American growth and prosperity in the 20 th century. Preventing Alzheimer’s and other costly diseases will not only reduce healthcare costs but also make our workforce healthier, thus strengthening American competitiveness in the global marketplace. NIH and the vital basic research it supports is at the heart of that strategy.”

Eric J. Hall, President and Chief Executive Officer of the Alzheimer’s Foundation of America
“Finding solutions to chronic diseases among our nation’s aging population must be moved to the front burner, especially as disorders like Alzheimer’s disease reach crisis proportion. Cutting NIH funding will halt or delay promising research on approaches to diagnose, prevent and treat age-related illnesses such as Alzheimer’s disease that are bankrupting Medicare and Medicaid. Worse, it is a devastating blow to the millions of individuals and family caregivers who rely on NIH for the possibility of a healthier tomorrow. As Congress negotiates 2011 funding, I urge members from both political parties to put themselves in the shoes of people struggling with chronic diseases. It doesn’t just make good fiscal sense to support NIH; it makes good moral sense.”

View the full LEAD coalition letter here: http://c3178112.r12.cf0.rackcdn.com/LEADSenateLetter.pdf

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USAgainstAlzheimer’s is a national advocacy campaign and advocacy network committed to stopping Alzheimer’s by 2020. An independent non-profit organization working in partnership with the Alzheimer’s community, USAgainstAlzheimer’s works to advance policies and elect candidates dedicated to stopping the disease by supporting research for a cure. For more information about USAgainstAlzheimer’s, visit http://www.usagainstalzheimers.org/.

The Alzheimer’s Foundation of America, based in New York, is a national non-profit organization that unites more than 1,600 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia, and to their caregivers and families. Its services include a toll-free hot line, educational materials, a free quarterly magazine for caregivers and professional training. For more information about AFA, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

Contact: Carol Steinberg
Phone: 866-AFA-8484

March 30, 2011
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Unveils Interactive ‘Community of Care’ Web Site to Educate and Connect Family Caregivers
New Tool Responds to Increasing Needs, Numbers of Caregivers Nationwide

NEW YORK, NY—With the nation facing a huge swell in the number of individuals with Alzheimer’s disease and related illnesses, the Alzheimer’s Foundation of America (AFA) today unveiled an innovative, interactive “community of care” Web site that will help family caregivers meet other caregivers, learn about the brain disorder and connect “live” with experts.

Called Care Crossroads, the robust site—www.carecrossroads.org—addresses a major issue raised by caregivers of loved ones with Alzheimer’s disease: a feeling of isolation and stigma. It also fills a growing need for alternate types of support services, especially for caregivers whose round-the-clock responsibilities prevent them from interacting in person at organized programs.

“Caregiving, especially for loved ones with Alzheimer’s disease, can be a very lonely as well as heartbreaking journey,” said Eric J. Hall, AFA’s president and CEO. “Care Crossroads is the ultimate Internet coffee shop for caregivers. Family members can gather here to obtain guidance from experts and gain insight, support and inspiration from each other. Both are critical in coping with the enormous challenges they face today and preparing for what’s ahead.”

Among the site’s highly-versatile and unique features, AFA’s social workers are standing by to respond to questions and concerns on caregivers’ own communication terms: online via live Skype and chat, as well as e-mail and phone calls to the organization’s toll-free hot line at 866-232-8484.

Caregivers are introduced to other caregivers via “I Care” video stories and creative contributions, with more of each to be posted regularly.

In addition, in partnership with Inspire, an online multi-disease health and wellness support community, caregivers can talk with like-minded peers on various issues—from diagnosis to end-of-life decision making—on an active discussion board.

Then, featured in the site’s “learn” section, the “House of Care” is the go-to place where visitors can click on specific rooms to learn more about strategies for behavioral challenges, recreational activities and safety issues appropriate for the specific stages of the disease.

All of these various elements provide the type of support that caregivers like Judith Flynn, for example, desperately need. Her husband was diagnosed with the disease at age 53.

“To me, it’s very important that I be able to share my feelings about all the changes that have gone on in my life, the sadness that I feel in losing my husband to this disease,” said Flynn, in a video that welcomes visitors to the “meet” section of Care Crossroads.

Currently, as many as 5.1 million Americans are living with Alzheimer’s disease, and the incidence is expected to multiply three-fold by mid-century due largely to the nation’s aging population. Advanced age is the greatest known risk factor for the disease, which primarily affects people 65 and older. Seventy percent of people with Alzheimer’s disease live at home, where families provide at least 75 percent of their care.

Care Crossroads was made possible by funding from Eisai Inc. and Pfizer Inc.

The new Web site joins a network of AFA Web sites and AFA’s multiple educational resources, including a free, quarterly magazine for caregivers, care ADvantage; a “Your Time to Care” DVD series on care issues, wandering, medication management and falls prevention; and a monthly teleconference that links up to 150 caregivers from across the country.

Contact: Carol Steinberg
Phone: 866-AFA-8484

February 28, 2011
FOR IMMEDIATE RELEASE

Hundreds of Alzheimer's Researchers, Service Providers Urge U.S. Senate to Safeguard Federal Research Funding
House-passed funding cuts to National Institutes of Health ignore long-term fiscal impact of Alzheimer’s costs for Medicare, Medicaid and America’s families

WASHINGTON, D.C. — As the U.S. Senate debates a spending bill for the remainder of the fiscal year, nearly 400 Alzheimer’s researchers and service providers from across the country sent a letter today urging Senators to defend maintenance of FY2011 funding for the National Institutes of Health (NIH) at FY2010 funding levels or better.

Pointing to the already massive costs of caring for individuals with Alzheimer’s disease, which will only continue to accelerate as baby boomers turn 65, the letter highlights the fiscal wisdom of NIH investments aimed at preventing or curing a disease that threatens to bankrupt our healthcare system.

“Alzheimer’s is a cancer-sized problem requiring a cancer-sized response,” said Dr. Stanley Prusiner, Nobel Laureate, recent recipient of the National Medal of Science and director of the Institute for Neurodegenerative Diseases at the University of California, San Francisco. “Yet, to date, the Alzheimer’s field is grossly underfunded, at a level of less than ten percent that of cancer and the level of meritorious peer-reviewed grants is at an all time low.”

As Congress addresses the deficit, the letter signatories also emphasize that shrinking already minimal support for research on Alzheimer’s disease and other aging-related disorders at a time when our population is aging will only increase ballooning Medicare and Medicaid costs. Currently, Medicare beneficiaries with multiple chronic conditions, including Alzheimer’s disease, cost three times as much as those without Alzheimer’s disease; and for Medicaid, the costs of an Alzheimer’s beneficiary are nine times that of a non-Alzheimer’s beneficiary.

“If we do not invest today in biomedical innovation for major chronic diseases that affect older Americans, such as Alzheimer's disease, we will bankrupt Medicare and Medicaid in the years to come,” said George Vradenburg, chairman and co-founder of USAgainst Alzheimer’s. “This is a reality our nation simply cannot afford and cannot accept. Without striving for a cure for Alzheimer’s, we are accepting the fact that we will be a nation in the nursing home business—the iron-lung-and-leg-braces-business of the 21 st century.”

Last year, Alzheimer’s disease costs were estimated at $172 billion, yet the federal investment at the NIH in Alzheimer’s disease research was less than one percent of that amount. With an estimated 5.1 million Americans diagnosed with Alzheimer’s disease, and the incidence expected to increase drastically over the coming decades, the burden of the costly disease will fall on the shoulders of American families.

“Failing to support promising research for a cure to this devastating disease is morally indefensible, especially as millions of American families are already struggling to care for loved ones with Alzheimer’s disease,” said Eric J. Hall, president and chief executive officer of the Alzheimer’s Foundation of America. “The time for investment in NIH research is now.”

Cuts to NIH funding are also putting at risk the global competitive advantage the United States has traditionally enjoyed in bio-medical research.

“The best places to start new careers in Alzheimer’s research are no longer in the United States because the NIH is inadequately supported by the Federal budget," said Dr. Sam Gandy, director of the Mount Sinai Center for Cognitive Health in New York. "The Federal government must adequately invest in Alzheimer’s research or lose a global advantage it has enjoyed for fifty years. Promising leads for preventing Alzheimer's in the aging Boomer population are dying on the vine. Sadly, I see no prospects for improvement.”

The letter was organized by USAgainst Alzheimer’s and the Alzheimer’s Foundation of America, two conveners of Leaders Engaged on Alzheimer’s Disease (LEAD), a coalition of Alzheimer’s-serving organizations committed to increasing America’s commitment to stop Alzheimer’s disease. Full text of the letter is available here: http://c3092662.r62.cf0.rackcdn.com/LEAD_Letter_to_the_US_Senate.pdf

Contact: Carol Steinberg
Phone: 866-AFA-8484

December 21, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Receives 4-Star Rating from Charity Navigator
Public Voted for Foundation to Be Charity Navigator’s Next Rated Organization

NEW YORK, NY—The Alzheimer’s Foundation of America (AFA) announced today that it has received the highest rating--four stars--from Charity Navigator, the nation’s largest independent evaluator of charitable organizations.

According to Charity Navigator, its four-star rating designates that AFA exceeds industry standards and outperforms most charities in its cause. Only 32 percent of the more than 5,500 largest charities nationwide that Charity Navigator has evaluated for organizational efficiency and capacity have received this top ranking.

AFA was rated after it won a competition by Charity Navigator in which the company for the first time selected five organizations and asked the public to vote on which one it should evaluate next. Charity Navigator held the voting competition November 1 through 29, and announced it through social media networks such as Twitter and Facebook, in addition to the organization’s blog and e-newsletter. Meanwhile, AFA had applied for the rating and was on a waiting list to be evaluated when it got picked for the contest.

“Receiving Charity Navigator’s four-star rank marks a significant stamp of approval on how we operate and provides additional reassurance to the families we serve and to current and prospective donors,” said Eric J. Hall, AFA’s president and chief executive officer. “The Alzheimer’s Foundation of America is committed to maximizing dollars spent on programs and services to ensure that families nationwide receive the help they need now and in the future.”

AFA is also an accredited charity by the Better Business Bureau and a recipient of the “Best in America” seal of excellence from Independent Charities of America. Its financial report is available at www.alzfdn.org.

Alzheimer's Foundation of America

The Alzheimer's Foundation of America, based in New York, is a non-profit organization that unites more than 1,400 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia and to their caregivers and families. Its services include a toll-free hotline, educational materials, a free quarterly magazine for caregivers and professional training. For more information, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

Contact: Carol Steinberg
Phone: 866-AFA-8484

December 9, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Official to Testify Before Congress and Urge Policymakers to Act Now on Alzheimer’s Disease Crisis
Foundation’s CEO to Call for End to ‘Devastation’ in House Subcommittee Testimony Today

NEW YORK, NY—Eric J. Hall, the president and chief executive officer of the Alzheimer’s Foundation of America (AFA), today will call on policymakers to “end the devastation” caused by Alzheimer’s disease in testimony before the United States House Committee on Energy and Commerce Subcommittee on Health.

The subcommittee hearing will look at “Alzheimer’s Disease: The Ongoing Challenges.” It comes a day after the United States Senate Special Committee on Aging similarly focused on this disease, holding a forum entitled “Until There’s a Cure: How to Help Alzheimer’s Patients Now,” at which Hall participated on the panel.

His message: policymakers must urgently focus on increased funding for research related to Alzheimer’s disease and other chronic diseases, and care for individuals with Alzheimer’s disease and their families.

At the same time, “in the absence of a realistic short term prospect for a cure” for Alzheimer’s disease, AFA is sending a similar call to action to the public. It is encouraging Americans to sign a petition urging President Obama and Congress to declare a “decade of care” for individuals with dementia and their families, including creating a comprehensive strategy that features competent, cost-effective care, support and training; the petition is available on AFA’s Web site at www.alzfdn.org.

In today’s testimony, Hall will urge Congress to increase the investment in preventing, treating or curing the “silver tsunami” of age-associated chronic diseases, such as Alzheimer’s disease, calling it “perhaps the single most effective strategy in reducing national spending on health care.”

“Simply put, our nation does not have the luxury of time to wait to address the health research needs of this population,” Hall said.

Specifically, AFA is seeking $1.4 billion, an increase of $300 million, in the fiscal year 2012 National Institutes of Health budget for the National Institute on Aging (NIA).

On December 8, in his comments to the Senate Special Committee on Aging, Hall similarly pressed for more federal investment in aging research and increased resources at NIA, as well as the need for caregiver support services and professional training.

He emphasized that organizations nationwide, including AFA’s 1,400+ member organizations, are absolutely engaged and forging ahead with care for the increased number of families affected by Alzheimer’s disease and related illnesses.

“An enormous footprint is already present in our country and dedicated professionals are giving their blood for this cause,” Hall said. “But what we have now is not enough.”

Earlier this month, AFA held the nation’s first Alzheimer’s disease telethon to raise awareness of the disease and likewise highlight the urgency of the need for care and cure. The “Together for Care” telecast, which aired on December 4 on local NBC stations in 16 markets, is now available on AFA’s Web site.

Currently, an estimated 5.1 million Americans are diagnosed with Alzheimer’s disease, and the incidence of the brain disorder is expected to skyrocket due largely to the aging population, including the first wave of baby boomers turning 65 next year. Advanced age is the greatest known risk factor. The disease results in loss of memory and other intellectual function, and is now the sixth leading cause of death in the United States.

Alzheimer's Foundation of America

Contact: Carol Steinberg
Phone: 866-AFA-8484

December 7, 2010
FOR IMMEDIATE RELEASE

More Celebrities Rally Behind Alzheimer’s Foundation of America’s Successful Telethon
Athletes and Actors Urge Americans to Get Help, Share Tributes, Support the Cause

NEW YORK, NY— Building on the awareness raising of Alzheimer’s disease by the Alzheimer’s Foundation of America’s (AFA) successful “Together for Care” telethon last weekend, more leading celebrities are speaking out about the brain disorder and urging Americans to take advantage of as well as support programs and services nationwide.

Among them are two N.F.L. players who have experienced Alzheimer’s disease in their own families: Kirk Morrison of the Jacksonville Jaguars and Kellen Winslow, Jr. of the Tampa Bay Buccaneers.

Calls to action by these two athletes and more than a dozen actors and musicians are now posted on AFA’s Web site—www.alzfdn.org. The Web site also features the complete one-hour telecast of the “Together for Care” telethon and additional songs by the show’s musical performers—Kris Allen, Brett Eldredge, Shontelle and Wilson Phillips. The Wilson Phillips trio, who recently reunited to record their first-ever holiday CD, share the CD’s “I Wish It Could Be Christmas Every Day” on the Web site.

Marking the nation’s first-ever telethon for Alzheimer’s disease, AFA’s star-studded “Together for Care” event made its debut on local NBC stations in 16 major markets on December 4.

“With this telethon, the Alzheimer’s Foundation of America has successfully begun to change the face of Alzheimer's disease,” said Eric J. Hall, AFA’s president and CEO. “Our message that it is time to lift the veil off Alzheimer’s disease has struck a chord with people across the country. They’ve been reaching out to AFA for help and donating to support the cause—and they have been infused with a new sense of hope.”

In his call to action, actor Louis Gossett, Jr., points out that caring for a loved one with Alzheimer’s disease is a 24/7 responsibility—and “it’s hard.” He urges people to contact AFA to obtain “desperately needed support and assistance. Get help, or please, please, donate if you can.”

Winslow and his wife, Janelle, have focused their message on wandering—a problem that hit home when Janelle’s dad went missing for three long days last year. Luckily, her 69-year-old dad, Enrique “Henry” Guzman, who was diagnosed with Alzheimer’s disease three years ago, was found safe and sound.

The football player said he wanted to be part of the telethon in order to raise awareness and “give the people with this disease and their families a voice.”

“There are so many challenges caregivers face, like wandering, confusion, aggression and violence. But the message I would send to relatives of loved ones with Alzheimer's disease is not to give up on your relative, fight the disease with them. Hold on to all the memories you had when they were well,” he said.

For his message, Morrison chose to pay a heartfelt tribute to his grandmother, who he recently lost to Alzheimer’s disease. “I think about all the times that we had together…and how I loved her,” he said.

Other celebrities rallying behind the cause are Nate Berkus, Shawn Colvin, Ellen DeGeneres, Catherine Dent, The Doctors, Morgan Freeman, Naomi Judd, Sarah Lancaster, Mario Lopez, Shirley Jones, The Rockettes, Rob Thomas and Donald Trump.

Hosted by Al Roker of the “Today” show and led by actor Hector Elizondo, AFA’s honorary celebrity chairman, the show includes appearances by Scott Adsit, Lidia Bastianich, Joy Bauer, Nikki Blonsky, Katrina Bowden, Grizz Chapman, Hope Dworaczyk, Jill Eikenberg, Elmo, Steve Guttenberg, Carl Lewis, Natalie Morales, Michael Tucker and Wendy Williams. Shontelle sings her Billboard hit, “Impossible”; Kris Allen, winner of American Idol season 8, performs an acoustic version of his hit, “Live Like We’re Dying,” Wilson Phillips performs their legendary single, “Hold On”; and emerging country artist Brett Eldredge sings his powerful Top 40 single “Raymond,” which was inspired by his own grandmother’s memory loss.

AFA is encouraging the public to visit its Web site to view the telethon and related content, as well as to learn more about the disease and available resources. In addition, following Morrison’s lead, the public can post tributes to their own loved ones by sharing stories on the Alzheimer’s Foundation of America’s facebook discussion page.

The public can still support the telethon by making a donation, participating in AFA’s online auction and buying telethon-related merchandise. For more information or to donate, visit www.alzfdn.org or call toll-free 866-232-8484.

Currently, an estimated 5.1 million Americans are diagnosed with Alzheimer’s disease, the most common form of dementia. The incidence is expected to skyrocket as the nation’s population ages. Advanced age is the greatest known risk factor for the disease, which results in loss of memory and other intellectual function, and is now the sixth leading cause of death in the United States.

Alzheimer's Foundation of America

Contact: Carol Steinberg
Phone: 866-AFA-8484

December 1, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Announces Celebrity Lineup on ‘Together for Care’ Telethon and Urges President Obama to Declare ‘Decade of Care’

NEW YORK, NY— The Alzheimer’s Foundation of America (AFA) is pressing to raise Alzheimer’s disease to an unprecedented level of awareness by holding the nation’s first Alzheimer’s disease telethon on December 4 and simultaneously calling on Americans to urge President Obama and Congress to declare a “decade of care.”

AFA’s “Together for Care” telethon rallies leading celebrities and media personalities around the cause to offer information and hope to families nationwide. Hosted by Al Roker of the “Today” show, the entertainment-packed and education-rich event will air on NBC local stations in 16 major markets along with NBC’s new 24-hour local lifestyle and news channel, Nonstop, in Chicago, New York, Philadelphia and Washington, DC. It will also be telecast online for national viewing at www.alzfdn.org.

AFA today announced the final lineup for the one-hour, star-studded telethon. Musical guests are Shontelle, singing her Billboard hit, “Impossible”; Kris Allen, winner of American Idol season 8, performing an acoustic version of his hit, “Live Like We’re Dying,” Wilson Phillips, who recently reunited to record their first-ever holiday CD and will perform their legendary single, “Hold On”; and emerging country artist Brett Eldredge, whose powerful Top 40 single “Raymond” was inspired by his own grandmother’s memory loss.

Led by actor Hector Elizondo, AFA’s honorary celebrity chairman, the show includes appearances by Scott Adsit, Lidia Bastianich, Joy Bauer, Nikki Blonsky, Katrina Bowden, Grizz Chapman, Hope Dworaczyk, Jill Eikenberg, Elmo, Steve Guttenberg, Carl Lewis, Natalie Morales, Michael Tucker and Wendy Williams. A roster of prominent celebrities, including Ellen DeGeneres and Donald Trump, will present calls to action.

Coinciding with the Alzheimer’s disease telethon, AFA is encouraging Americans to sign a petition urging President Obama and Congress to declare a “decade of care” for individuals with dementia and their families.

“In the absence of a realistic short term prospect for a cure,” the petition calls for “creating a comprehensive strategy that includes competent, cost-effective care for individuals with Alzheimer's disease and related dementias, and support and training for their family caregivers.” Specifically, it urges increased federal research funding, a national prevention and early detection plan, an expanded geriatrics workforce and training, creation of a seamless continuum of care, and training and respite care for family caregivers.

For details about the telethon, including show times, and to sign the petition, visit www.alzfdn.org.

“We no longer have the luxury of time when it comes to Alzheimer’s disease,” said Eric J. Hall, AFA’s president and CEO. “Our hope is that these efforts will catapult the nation into realizing that Alzheimer’s disease is in the future for too many American families, and that now is the time for all of us to intensely focus on care and cure. This healthcare crisis must be a national priority.”

Currently, as many as 5.1 million Americans are diagnosed with Alzheimer’s disease, which results in loss of memory and other intellectual functions. AFA’s strategy comes as the nation braces for an expected onslaught of cases of Alzheimer’s disease as a result of the aging population, including the first wave of baby boomers who turn 65 next year. Advanced age is the greatest known risk factor for the brain disorder, with the incidence of dementia doubling every five years beyond age 65. It is the sixth leading cause of death in the United States.

The telethon will provide insight from experts into the current state of Alzheimer’s disease, and shed light on the daily challenges faced by families, including those caring for individuals with a rare form of the disease, called young onset, that affects people under age 65.

Hall said he is especially grateful for the generous involvement of celebrities, including many whose own family members have been affected by Alzheimer’s disease.

“Their desire to give back is heartwarming and reflects a growing recognition of the widespread impact of this disease,” he said.

Among the emotion-filled performances, Allen performs against a background of heartfelt quilts from the Alzheimer’s Foundation of America’s Quilt to Remember.

“I felt privileged that the Alzheimer’s Foundation of America asked me to be a part of the Together for Care telethon,” said Allen, whose cousin’s grandmother had the disease. “It is extremely heartbreaking for those diagnosed with this disease and their surrounding loved ones. I can only hope that my participation in this telethon will help raise awareness for such a worthy cause.”

For other celebrity participants, the cause also has personal significance. Actress and singer Shirley Jones sends out a compelling message to viewers, reminding them that “care makes all the difference.” Her “sweet aunt” had Alzheimer’s disease.

Noting her hopes for the telethon, she said, “The ‘objective’ of all ‘information exposure’ is to raise the public’s awareness of the topic—in this case, the total devastation that an Alzheimer’s diagnosis carries with it.”

In addition to watching the telethon, AFA is encouraging the public to get involved by sharing tributes to loved ones on AFA’s Facebook discussion page; bidding on items in AFA’s online auction; and purchasing telethon-related products available on its e-Store at www.alzfdn.org; among them, a T-shirt that spreads the message, “I Care.”

For more details about the telethon, including air times, visit www.alzfdn.org or call 866-232-8484. Eisai Inc., a human health care company, is the telethon’s platinum sponsor. The show is produced by Al Roker Entertainment.

Alzheimer's Foundation of America

Contact: Carol Steinberg
Phone: 866-AFA-8484

November 11, 2010
FOR IMMEDIATE RELEASE

Alzheimer's Foundation of America to Hold National Memory Screening Day
Influx of Aging Baby Boomers Emphasizes Importance of Event

NEW YORK, NY— With memory concerns and successful aging major topics of concern for the aging population, especially as the first baby boomers turn 65 next year, the Alzheimer’s Foundation of America (AFA) is answering the call by offering free, confidential memory screenings and educational materials about brain health during its 8th annual National Memory Screening Day (NMSD) on November 16.

AFA holds the initiative each November during National Alzheimer’s Disease Awareness Month as part of its overall strategy to promote early detection of memory problems and appropriate intervention. Most recently, AFA successfully advocated for inclusion of detection of any cognitive impairment in the annual wellness exam for Medicare beneficiaries that takes effect next year.

Qualified healthcare professionals will conduct the face-to-face screenings at more than 2,300 venues nationwide, such as doctors’ offices, hospitals, senior centers, assisted living facilities, pharmacies and libraries—including, for example, the landmark New York Public Library on Fifth Avenue in Manhattan. Several sites in major cities will offer screenings in Spanish. In addition, all 1,006 Kmart pharmacies will offer memory screenings from 9 a.m. to 1 p.m. as part of the chain’s Senior Health Event.

To locate a screening site, visit www.nationalmemoryscreening.org or call 866-AFA-8484.

The screening consists of a series of questions and tasks to test memory, language skills and other intellectual functions, and takes about five minutes to administer. The results do not represent a diagnosis, and screeners encourage individuals with below-normal scores as well as those who still have concerns to pursue a full medical exam.

“If you notice memory problems, don’t be afraid to take steps to find out what’s really going on,” said Eric J. Hall, AFA’s president and chief executive officer. “Our efforts to highlight the importance of being proactive about memory concerns and the value of early detection are resonating across the nation. We’re going to keep building on this momentum.”

AFA suggests memory screenings for adults concerned about memory loss or experiencing warning signs of dementia; whose family and friends have noticed changes in them; or who believe they are at risk due to a family history of Alzheimer’s disease or a related illness. Screenings also are appropriate for those who do not have a concern right now, but who want to see how their memory is now and for future comparisons.

In a report, “Memory Matters,” released in December 2008, AFA underscored the value of memory screenings, noting that current research supports screening as a “safe, cost-efficient intervention that can reassure the healthy individual, promote successful aging and, when indicated, direct individuals to appropriate clinical resources.”

Other AFA studies also support the need for earlier detection of memory problems. One survey showed that individuals waited as long as six years from the time they recognized symptoms of dementia to when they sought a diagnosis. In addition, a large percentage of past NMSD participants reported that they had memory concerns but had not expressed them to healthcare professionals despite recent visits.

Memory problems could be caused by Alzheimer's disease or other medical conditions. Some memory problems can be readily treated, such as those caused by vitamin deficiencies or thyroid problems. Other member problems might result from causes that are not currently reversible, such as Alzheimer's disease.

It is estimated that as many as 5.1 million Americans have Alzheimer’s disease, which causes loss of memory and other intellectual functions. With age the greatest known risk factor, the incidence of the disease doubles every five years between 65 and 95.

Supporting the event this year are 25 major professional and trade groups, including organizations such as the American Academy of Neurology, the American Academy of Nurse Practitioners, the American Psychological Association and the National Association of Area Agencies on Aging.

Forest Laboratories is the silver sponsor, and Novartis is the remembrance sponsor of this year’s event.

Alzheimer's Foundation of America

Contact: Carol Steinberg
Phone: 866-AFA-8484

November 11, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America ‘Together for Care’ Telethon to Include Leading Celebrities
Wilson Phillips Reunites on Stage to Help Rally Nation to Address Health Crisis

NEW YORK, NY— In tribute to their own loved ones or other individuals affected by Alzheimer’s disease, leading celebrities will unite around this looming health crisis by participating in the Alzheimer’s Foundation of America (AFA)’s “Together for Care” telethon on December 4.

Al Roker of the “Today” show will serve as host, and actor Hector Elizondo, AFA’s honorary celebrity chairman, will help to educate the public about the disease that took his mother’s life.

Performances will include the ladies of Wilson Phillips, who recently reunited to record their first-ever holiday CD, “Christmas in Harmony.” Mixing brand new and classic, the vocal trio will usher in the holidays with a song from their latest album, as well as perform “Hold On,” the harmony-rich hit from their first album that sounds a symbolic message for the telethon.

Among other performers, country music artist Brett Eldredge will bring home the reality of Alzheimer’s disease when he sings his new single “Raymond”—with heartfelt lyrics inspired by his own grandmother’s memory loss.

Also lending their support will be Scott Adsit, Grizz Chapman and Katrina Bowden of the NBC sitcom “30 Rock,” “Today” show co-anchor Natalie Morales and nutrition contributor Joy Bauer, talk show host Wendy Williams, actor Steve Guttenberg, and actress and singer Nikki Blonsky. Additional celebrities will be announced shortly.

The show is designed to entertain and educate viewers, heighten awareness of the urgency of care and cure, and raise funds to meet the needs of the growing number of people with the brain disorder, especially as the first wave of baby boomers turn 65 next year. It will air in 16 major markets on NBC and be telecast online on AFA’s Web site for national viewing.

The telethon will provide insight from experts into the current state of Alzheimer’s disease, and shed light on the daily challenges faced by families impacted by the disease.

“Alzheimer’s disease is hitting home more and more each day, and with each case, the need for resources becomes that much more urgent,” said Eric J. Hall, AFA’s president and CEO. “We must motivate the nation to pay attention and to pitch in. This healthcare crisis must be a national priority.”

In addition to watching the telethon, AFA is encouraging the public to get involved by sharing tributes to loved ones on AFA’s Facebook discussion page, and initiating community and corporate fundraising projects. AFA has also unveiled a line of telethon-related products available on its e-Store at www.alzfdn.org; among them, a T-shirt that spreads the message, “I Care.”

With an estimated 5.1 million Americans diagnosed with Alzheimer’s disease, the telethon comes as the nation braces for an escalating incidence of the brain disorder due largely to the aging population. Advanced age is the greatest known risk factor. The disease results in loss of memory and other intellectual function, and is now the sixth leading cause of death in the United States.

Alzheimer’s Foundation of America

The Alzheimer’s Foundation of America, based in New York, is a non-profit organization that unites more than 1,400 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia and to their caregivers and families. Its services include a toll-free hotline, educational materials, a free quarterly magazine for caregivers and professional training. For more information, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

Contact: Carol Steinberg
Phone: 866-AFA-8484

November 8, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America’s National Commemorative Candle Lighting to Honor Individuals Affected by Alzheimer’s Disease

NEW YORK, NY —When Lynn Pearson of Titusville, FL lights a candle to honor her sister on November 14, she’ll be joining thousands of families across the nation whose lives have been touched by Alzheimer’s disease—families who are coming together in spirit to take part in the Alzheimer’s Foundation of America’s (AFA) National Commemorative Candle Lighting.

AFA sponsors the annual event, now in its eighth year, as part of National Alzheimer’s Disease Awareness Month. Community groups and individuals will host hundreds of inspirational ceremonies around the country on that day. To find a site, visit www.candlelighting.org or call 866-232-8484.
For Pearson, the candle lighting is both a way to pay tribute to her sister, Laine Myers, who was only 48 when she passed away as a result of Alzheimer’s disease in 2004, and to bring the community together. Pearson will host the local ceremony at The Place at Merritt Island Assisted Living in Merritt Island, FL to deliver what she hopes will be a powerful message to families affected by Alzheimer’s disease: You are not alone.

“My hope is to fill the acreage in front of the building with people lighting candles, and that the vision of all those people standing together will provide a memory,” said Pearson, who is the facility’s director of community relations.

Pearson’s goal is shared by others who are organizing the local candle lighting ceremonies, said Eric J. Hall, AFA’s president and chief executive officer.

“These ceremonies provide a way for people touched by the disease to find comfort in togetherness. They show individuals with the disease, their caregivers and their families that they have the support of their communities,” he said.

Also in its efforts to raise awareness of Alzheimer’s disease during National Alzheimer’s Disease Awareness Month and year-round, AFA will sponsor National Memory Screening Day on November 16 and its inaugural “Together for Care” telethon on December 4. For more information about these events, visit www.alzfdn.org.

Alzheimer’s disease is a progressive brain disease that destroys memory and other intellectual abilities, and is the sixth leading cause of death in the United States. Currently, it affects as many as 5.1 million Americans, and the incidence is expected to rise in line with the nation’s aging population. Advanced age is the greatest risk factor, although some people are diagnosed with the disease under age 65.

The candle lighting ceremonies across the country will feature a candle lighting and a reading of the names of local residents who had or have Alzheimer’s disease. Some communities will add their own touches, such as poetry readings or choir music, and some houses of worship will incorporate ceremonies into their regular weekend prayer services.

The Merritt Island ceremony exemplifies the effort organizers like Pearson put into coordinating their local events. Pearson has reached out to organizations and leaders throughout her community to provide resources and information at the ceremony. Rosemary Laird, M.D., director of the Health First Aging Institute in Rockledge, FL, will be the keynote speaker; Ann Taylor Owen, a chaplain with Wuesthoff Brevard Hospice, will conduct the ceremony; and local musicians will perform “Where You’ve Been,” a heartrending song by country music star Kathy Mattea, whose mother had Alzheimer’s disease.

Alzheimer’s Foundation of America

Contact: Carol Steinberg
Phone: 866-AFA-8484

November 3, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America to Introduce Free Memory Screenings in Spanish
Higher Risk for Latinos Emphasizes Importance of National Memory Screening Day Event

NEW YORK, NEW YORK— The Alzheimer’s Foundation of America (AFA) in collaboration with the Latino Alzheimer’s and Memory Disorders Alliance, Mexican Consulate and major hospitals will offer free, confidential memory screenings in Spanish in Chicago, Los Angeles and New York on various dates in November.

The events are part of AFA’s National Memory Screening Day, which it holds during National Alzheimer’s Disease Awareness Month each November as part of its overall strategy to promote early detection of memory problems and appropriate intervention. Its 8th National Memory Screening Day is November 16, although some sites offer the screenings on other days.

This year, in addition to sites offering screenings in English, AFA hopes to reach the underserved Hispanic/Latino population by providing screenings and educational materials that are in Spanish and culturally-sensitive, and by holding the event at familiar settings and in partnership with local organizations that serve this community.

The Spanish initiative comes in response to an increasing incidence of Alzheimer’s disease among Hispanics/Latinos due to greater risk factors and the projected growth of those aged 65 and older from 2.7 million in 2008 to more than 17 million by 2050. Advanced age is the greatest known risk factor for the brain disorder, which causes loss of memory and other intellectual function and is the sixth leading cause of death in the United States.

In Los Angeles, the Mexican Consulate will hold screenings in partnership with UCLA Easton Center on November 6 from 8 a.m. to noon at the consulate. In Chicago, the Alivio Medical Center will administer screenings on November 17 from 4 p.m. to 9 p.m. at its facility; the Mexican Consulate, November 18 and 19 from 9 a.m. to noon at the consulate; the Rush Alzheimer’s Disease Center, November 19 from 10:30 a.m. to 1:30 p.m. at the Villa Guadalupe Senior Services; and Sinai Health System, November 20 from 9 a.m. to 1 p.m. at the Sinai Community Institute. In New York, the Mexican Consulate, with participation from NYU School of Medicine and Bellevue Hospital, will provide screenings on November 16 from 9 a.m. to 1 p.m. at the consulate. For more details, visit www.nationalmemoryscreening.org.

Qualified healthcare professionals will conduct the face-to-face screenings, which consist of questions and tasks to test memory, language skills and other intellectual functions, and takes about five minutes to administer. The results do not represent a diagnosis, and screeners encourage individuals with below-normal scores as well as those who still have concerns to pursue a full medical exam.

Participants will receive educational materials about memory issues, successful aging and caregiving, and referrals to community resources and AFA’s bilingual social workers for follow up.

“AFA and its partnering organizations all share a passion to help the Hispanic/Latino population better understand memory problems and to encourage them to be proactive about any concerns. It’s time for all of us to talk openly about this issue,” said Eric J. Hall, AFA’s president and CEO.

Actor Hector Elizondo, AFA’s honorary celebrity chairman, is also encouraging people to get screened.
“Memory screenings can point you in the right direction. Take the results and start talking with your healthcare professional—sooner rather than later,” said Elizondo, whose mother had Alzheimer’s disease.
AFA surveys support the need for education about Alzheimer’s disease, especially among minority populations. One survey found that 67 percent of Hispanic caregivers dismissed symptoms of Alzheimer’s disease as “old age,” which contributed to a delay in diagnosis.

Forest Laboratories is the silver sponsor and Novartis is the remembrance sponsor of this year’s National Memory Screening Day.

Alzheimer’s Foundation of America

Contact: Carol Steinberg
Phone: 866-AFA-8484

October 14 , 2010
FOR IMMEDIATE RELEASE

ALZHEIMER'S DISEASE CAREGIVERS IDENTIFY MEMORY LOSS, PERSONAL SAFETY AND CONFUSION AS TOP THREE CONCERNS RELATED TO PROGRESSION OF THEIR LOVE ONE'S DISEASE.
-- National Survey Co-Sponsored by Alzheimer’s Foundation of America , Eisai and Pfizer Sheds Light on Difficulties Faced by America’s Alzheimer’s Disease Caregivers --

Woodcliff Lake, N.J., and New York, October 14, 2010 ― Results announced today from a national survey of Alzheimer’s disease (AD) caregivers found that memory loss and confusion, which are cognitive symptoms, in addition to personal safety are the greatest concerns related to the progression of their loved one’s AD. In fact, 67 percent of AD caregivers surveyed sa id changes in cognitive symptoms were among their main concerns . The survey of 524 non-professional caregivers, which was conducted by Harris Interactive in September 2010 for Eisai Inc. and Pfizer Inc in partnership with the Alzheimer’s Foundation of America (AFA), provides insight into the current state of caring for a loved one with AD in the United States.

“These survey results reveal the changes in cognition as the disease progresses were an important concern among caregivers,” said Eric J. Hall, president and CEO of AFA. “ We encourage caregivers and health care professionals to discuss these changes and any others during regular visits.”

As AD – a progressive brain disease typically characterized by three stages: mild, moderate and severe – changes over time, caregivers and their healthcare professionals may wish to regularly discuss modifications in lifestyle and treatment. According to the survey, the majority of AD caregivers are proactive participants in the dialogue and decision-making around their loved one’s disease, and 75 percent of those surveyed were either “satisfied” or “very satisfied” with the communication they have with their loved one’s health care professional. For the remaining 25 percent (who are either “somewhat” or “not at all satisfied”), there may be room for improvement in this dialogue.

“AD caregivers are typically the first to notice when their loved one’s symptoms are becoming worse and whether the disease may be progressing to the next stage, which is why caregivers are essential partners in disease management discussions,” said Barry W. Rovner, M.D., director of the Division of Geriatric Psychiatry and professor in the departments of Neurology and Psychiatry at Thomas Jefferson University , Philadelphia . “In the face of this devastating chronic and progressive disease, it is important for AD caregivers to know about the available educational resources, support networks and treatments in order to enhance these discussions at all stages of the disease.”

Key Survey Findings

Following are results illustrating the difficulties faced by caregivers, concerns about disease progression and discussions with health care professionals, highlighting differences between men and women. Of note, 173 males and 351 females were surveyed, which is reflective of the overall unpaid AD caregiver population, in which caregivers are more likely to be female.

Difficulties Faced by Caregivers

55 percent of AD caregivers surveyed said caring for their loved one has taken a toll on their own health
Women surveyed were more likely to worry “all the time” compared to men [13 percent versus 3 percent]. Also, women were less likely than men to feel that they have enough support to take care of themselves and their own needs [60 percent versus 76 percent]
60 percent of AD caregivers surveyed said they fe el overwhelmed
Women surveyed were more likely to consider “maintaining relationships with family or friends” as a challenge compared to men [47 percent versus 31 percent]
84 percent of caregivers of loved ones with severe AD surveyed said caregiving frequently stops them from participating in activities that they enjoy, which is more than caregivers of loved ones with mild (67 percent) and moderate (68 percent) AD

Concerns About Disease Progression

The three greatest caregiver concerns about the progression of their loved one’s AD were memory loss (41 percent), personal safety (33 percent) and confusion (27 percent)
67 percent of AD caregivers surveyed named at least one change in cognitive symptoms as a main concern about the progression of their loved one’s AD
Men surveyed were more likely to be concerned about memory loss compared to women [50 percent versus 37 percent]

Discussions with Health Care Professionals

Men surveyed were more likely to be satisfied with communication with their health care professional compared to women [84 percent versus 70 percent] . Also, men were more likely to regularly discuss options for information or support [26 percent versus 14 percent]
53 percent of AD caregivers surveyed who sa id they were not very involved (somewhat or not at all involved) in these interactions were dissatisfied with their loved one’s treatment, as compared with 31 percent who said they were engaged

Additional information about AD and caregiver resources can be found at www.alzfdn.org.

Survey Methodology

The survey was conducted by Harris Interactive in September 2010 for Eisai Inc. and Pfizer Inc in partnership with AFA. A total of 524 non-professional adult AD caregivers, including those of mild, moderate and severe AD patients, were surveyed. Caregivers were asked to classify the stage of their loved one’s AD, as identified by their loved one’s health care professional. Respondents for this survey were selected from among those who have agreed to participate in Harris Interactive surveys. The data have been weighted to reflect the composition of the U.S. non-professional AD caregiver population. Because the sample is based on those who agreed to participate in the Harris Interactive panel, no estimates of theoretical sampling error can be calculated. A full methodology is available. Funding was provided by Eisai Inc. and Pfizer Inc.

About AD

AD is a degenerative disease of the brain that gets worse over time and is the sixth leading cause of death in the United States. Right now, as many as 5.1 million Americans age 65 and older have AD, with 3.6 million of those having moderate-to-severe disease. As our population ages – including the first wave of baby boomers turning 65 in 2011 – the disease may impact a greater percentage of Americans. The number of people aged 65 and older may more than double between 2010 and 2050; likewise, those 85 and older may rise three-fold. As the number of people with AD increases, it is likely that the number of caregivers will increase as well.

Alzheimer’s Foundation of America

Eisai Inc.

Eisai Inc. was established in 1995 and is ranked among the top 20 U.S. pharmaceutical companies (based on retail sales). The company began marketing its first product in the United States in 1997 and has rapidly grown to become a fully integrated pharmaceutical business with fiscal year 2009 (year ended March 31, 2010) sales of approximately $3.9 billion. Eisai’s areas of commercial focus include neurology, gastrointestinal disorders and oncology/critical care. The company serves as the U.S. pharmaceutical operation of Eisai Co., Ltd.

Eisai has a global product creation organization that includes U.S.-based R&D facilities in Maryland, Massachusetts, New Jersey, North Carolina and Pennsylvania as well as manufacturing facilities in Maryland and North Carolina. The company’s areas of R&D focus include neuroscience; oncology; vascular, inflammatory and immunological reaction; and antibody-based programs. For more information about Eisai, please visit www.eisai.com.

Eisai Co., Ltd.

Eisai Co., Ltd. is a research-based human health care (hhc) company that discovers, develops and markets products throughout the world. Through a global network of research facilities, manufacturing sites and marketing subsidiaries, Eisai actively participates in all aspects of the worldwide healthcare system. Eisai employs approximately 11,000 employees worldwide.

Pfizer Inc: Working together for a healthier world ™

At Pfizer, we apply science and our global resources to improve health and well-being at every stage of life. We strive to set the standard for quality, safety and value in the discovery, development and manufacturing of medicines for people and animals. Our diversified global health care portfolio includes human and animal biologic and small molecule medicines and vaccines, as well as nutritional products and many of the world’s best-known consumer products. Every day, Pfizer colleagues work across developed and emerging markets to advance wellness, prevention, treatments and cures that challenge the most feared diseases of our time. Consistent with our responsibility as the world’s leading biopharmaceutical company, we also collaborate with health care providers, governments and local communities to support and expand access to reliable, affordable health care around the world. For more than 150 years, Pfizer has worked to make a difference for all who rely on us. To learn more about our commitments, please visit us at www.pfizer.com.

Harris Interactive

Harris Interactive is one of the world’s leading custom market research firms, leveraging research, technology and business acumen to transform relevant insight into actionable foresight. Known widely for The Harris Poll and for pioneering innovative research methodologies, Harris offers expertise in a wide range of industries including healthcare, technology, public affairs, energy, telecommunications, financial services, insurance, media, retail, restaurant and consumer package goods. Serving clients in over 215 countries and territories through our North American, European and Asian offices and a network of independent market research firms, Harris specializes in delivering research solutions that help us – and our clients – stay ahead of what’s next. For more information, please visit www.harrisinteractive.com.

The Alzheimer’s Foundation of America is a national nonprofit organization headquartered in New York whose mission is to provide optimal care and services to individuals with dementia, and their families. It unites more than 1,400 member organizations that provide hands-on programs to meet the educational, emotional and practical needs of families in their local communities. AFA’s services include a toll-free hot line, counseling, educational materials, a free caregiver magazine, and professional training. For information, call 866-AFA-8484 or visit www.alzfdn.org.

Contact: Carol Steinberg
Phone: 866-AFA-8484

October 4 , 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America to Hold Inaugural ‘Together for Care’ Telethon
Historic TV Event Aimed at Rallying Nation to Address Health Crisis

Alzheimer’s Foundation of America CEO Eric J. Hall (l) and actor Hector Elizondo announce Dec. 4 “Together for Care” Telethon. Click here to view multimedia news release.

NEW YORK, NY — The Alzheimer’s Foundation of America (AFA) will host an inaugural “Together for Care” telethon on December 4, marking the major focus of a comprehensive campaign by AFA to rally the nation to address this escalating health crisis and prepare to care for the projected surge in the number of Americans with Alzheimer’s disease in addition to the millions of families currently affected by it.

The historic TV event will air in 16 major markets on NBC and be telecast online on AFA’s Web site for national viewing, and feature a mix of education and entertainment. Al Roker of the “Today” show, who will serve as host, and actor Hector Elizondo, AFA’s honorary celebrity chairman, lead the show’s celebrity lineup.

“Now is the time to lift the veil off Alzheimer’s disease. Now is the time to galvanize the nation to make giant strides toward tackling this health crisis,” said Eric J. Hall, founding president and chief executive officer of AFA, a leading national nonprofit organization.

“While we all anxiously await a cure, care is all families can hold on to right now. Only by being proactive can we give them what they need to get through the day—and to have one more day with their loved ones,” Hall said.

Roker said he hopes the telethon “raises the nation’s consciousness about Alzheimer’s disease to a whole new level. The disease is getting way too big for us not to come together and make a difference.”

To shed light on Alzheimer’s disease, the telethon will include a look at the current state of Alzheimer’s disease from the perspective of medical experts and families who are caring for loved ones. Other celebrities and musical guests will be announced shortly.

The telethon kicks off AFA’s campaign to rally the nation “together for care.” AFA is urging the nation to advocate for more resources for care and cure, donate to support AFA’s services and initiatives nationwide, and seek assistance, including calling its toll-free hot line and obtaining free memory screenings on National Memory Screening Day on November 16.

With an estimated 5.1 million Americans diagnosed with Alzheimer’s disease, the call to action comes as the nation’s aging population, including the oldest baby boomers who turn 65 next year, is projected to fuel what some experts have dubbed a “silver tsunami.” Advanced age is the greatest known risk factor. The disease results in loss of memory and other intellectual function and is now the sixth leading cause of death.

August 9, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Updates Teleconference for Dementia Caregivers

NEW YORK, NY — To meet the growing needs of the dementia community, the Alzheimer’s Foundation of America has updated its free, educational teleconference service to encourage both family members and professionals caring for individuals with Alzheimer’s disease or a related illness to take advantage of its expert presentations and support network.

Called Care Connection, the teleconference will now include presentations about dementia that will interest both family and professional caregivers, and it will be held duringa time that should appeal to both audiences.It links up to 150 caregivers from anywhere in the country for each one-hour session.

Under the new format, AFA will now host Care Connection on the second Thursday of each month at 1 p.m. Eastern Time, beginning August 12. Caregivers can call in toll-free at 877-232-2992; the guest identification number is 271004#. AFA will archive sessions on its Web site at www.alzfdn.org.

On August 12, Eboni Green, RN, Ph.D., executive director of Caregiver Support Services, Omaha, NE, will discuss practical solutions for stressed out caregivers. On September 9, Marianne Terry, LSW, director of the Time Out Adult Day Center-Succasunna & Madison, Family Service of Morris County, Morristown, NJ, will provide activity ideas. And, on October 14, Roy Herndon Smith, Ph.D., coordinator of Community Geriatric Care Management, New York, NY, will outline ways to communicate with individuals as their functions decline. A detailed calendar is available at www.alzfdn.org.

A member of AFA’s social work team will facilitate each session and encourage call-in participants to pose questions to the experts as well as share their own experiences in a supportive environment.
“The needs of both family and professional caregivers are continuing to shift and evolve, but one thing remains clear: education and support are vital. Care Connection provides a valuable resource to help them on their caregiving journey,” said Eric J. Hall, AFA’s president and chief executive officer.

By shifting the service from the evening to the afternoon, family caregivers may be able to more easily participate while their loved ones are attending adult day centers or other respite programs, and organizations may encourage their healthcare employees to participate as a part of job training.

For family caregivers, Care Connection fills a growing need for alternate types of support services, especially for caregivers whose round-the-clock responsibilities prevent them from attending on-site sessions or interacting in person with other caregivers.

By participating in Care Connection, professional caregivers can keep up to date with the latest interventions to help care for clients. For those professionals qualified by AFA’s membership and training division, Dementia Care Professionals of America (DCPA), each session will count as one hour of training toward credits required to renew their DCPA status.

The Alzheimer’s Foundation of America is a national nonprofit organization that focuses on providing optimal care to individuals with Alzheimer’s disease and related illnesses, and their families. Its services include a toll-free hot line, counseling by licensed social workers, educational materials, training for healthcare professionals, and a free caregiver magazine. For more information, call toll-free 866-AFA-8484 or visit www.alzfdn.org.

July 21, 2010
FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Releases New DVD on Preventing Falls

NEW YORK, NY — The Alzheimer’s Foundation of America (AFA) recently released “Preventing Falls: Practical Steps to Reduce Fears and Risks,” the latest DVD in AFA’s “Your Time to Care” series of educational programs for family caregivers, in the hopes of helping caregivers reduce their own risk of falls and prevent their loved ones from falling.

Falls are a very common and life-threatening occurrence and are particularly worrisome for caregivers of individuals with Alzheimer’s disease, a brain disorder that primarily affects people older than 65. In fact, according to federal government statistics, o ne out of three individuals over the age of 65 will experience a fall, resulting in 20,000 deaths annually.

“What's really important to know is that a fall is preventable,” said Laura N. Gitlin, Ph.D., one of the experts featured in the DVD and director of the Center for Applied Research on Aging and Health, Thomas Jefferson University, Philadelphia.

With this in mind, “Preventing Falls” provides insight into why dementia intensifies the incidence of falls and offers practical strategies from experts and family caregivers on how to reduce risk factors, including communication techniques, home modifications and lifestyle changes.

Among the caregivers who share their concerns, Judy Earnest provides care for her 85-year-old mother who has Alzheimer’s disease; she is worried that her mother’s gradual loss of coordination and balance will lead to a devastating fall and that that may prompt Earnest to break her promise to keep her mom at home.

“She's never really been steady on her feet, but more so I think is, is her not realizing she can't do all the things she ever did,” said Earnest . “ I just don’t want her to get hurt.”

In the DVD, P. Murali Doraiswamy, M.D., co- author of “The Alzheimer’s Action Plan,” noted that dementia very often affects coordination and balance as it progresses. “Cognitive impairment substantially increases the risk for falls anywhere from about two to eight fold,” he said.

The DVD, which was funded in part with a grant from Novartis Pharmaceuticals, is available on AFA’s E-store at www.alzfdn.org or by calling 866-232-8484. Other topics in the “Your Time to Care” DVD series include wandering and medication management.

Alzheimer’s disease results in loss of memory and other cognitive functions, and is the seventh leading cause of death in the United States. An estimated one to four caregivers care for each person with the disease.

The Alzheimer’s Foundation of America is a national nonprofit organization based in New York City that focuses on providing optimal care to individuals with Alzheimer’s disease and related illnesses, and their families, and unites 1,400 member organizations nationwide that provide hands-on programs. AFA’s services include a toll-free hot line with counseling by licensed social workers, a free caregiver magazine, and National Memory Screening Day. For information, call 866-AFA-8484 or visit www.alzfdn.org.

June 21, 2010

FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America to Host Educational Conferences in North Carolina

NEW YORK, NY — North Carolina’s older population with Alzheimer’s disease or related dementias is on the threshold of a boom: it is expected to increase by 59 percent between now and 2030. Recognizing this, the Alzheimer’s Foundation of America (AFA) will host free care-focused conferences for family caregivers on August 6 in Charlotte and on August 7 in Raleigh.

During each of AFA’s “Concepts in Care” conferences, P. Murali Doraiswamy, M.D., chief of the Division of Biological Psychiatry at the Duke University School of Medicine, Durham, and the author of “The Alzheimer’s Action Plan,” will provide an understanding of Alzheimer’s disease and the importance of early detection and treatment.

Other experts will offer hands-on strategies to positively address behavioral challenges and activities of daily living. Ann Louise Barrick, Ph.D., director of psychology at Central Regional Hospital, Butner, NC, and author of “Bathing Without a Battle,” will present in Charlotte; and Teepa Snow, a dementia care training specialist and a consulting associate at the Duke University School of Nursing, Durham, will present in Raleigh.

In addition, AFA will offer confidential memory screenings and the Virtual Dementia Tour, an interactive tool developed by Second Wind Dreams that helps people better understand what it feels like to have dementia. These activities will be available free to conference attendees and the general public throughout the day.

The conference also includes breakfast and lunch, as well as respite care for individuals with dementia while their family members attend the conference.

The conference will take place from 8 a.m. to 3 p.m. on August 6 at the Hilton Charlotte City Center, 222 E. Third St. in Charlotte, and on August 7 at the Hilton North Raleigh/Midtown, 3415 Wake Forest Road in Raleigh. The conference is sponsored by Accera, Inc .

For more information or to register, please call 866-AFA-8484.

Currently, more than 170,000 older adults in North Carolina have Alzheimer's disease or other types of dementia, and the number is projected to rise to more than 288,000 in the next two decades, according to the North Carolina Division of Aging and Adult Services. The progressive brain disorder results in loss of memory and other intellectual function, and is the seventh leading cause of death in the United States.

“Nothing in life can really prepare someone to care for a loved one with Alzheimer’s disease. That’s why education is so important,” said Eric J. Hall, AFA’s president and chief executive officer. “By understanding the disease and learning practical care strategies, family members can better meet a person’s individual needs and improve quality of life.”

The Alzheimer’s Foundation of America is a national nonprofit organization headquartered in New York and made up of more than 1,400 member organizations that provide hands-on programs to meet the educational, emotional and practical needs of families. AFA’s services include a toll-free hot line, counseling, educational materials, a free caregiver magazine, and professional training. For information, call 866-AFA-8484 or visit www.alzfdn.org.

CONTACT: CAROL STEINBERG

866-AFA-8484 media@alzfdn.org

June 1, 2010

FOR IMMEDIATE RELEASE

Dementia Caregivers Can Connect Weekly via Phone Support Network

NEW YORK, NY — Many caregivers caught up in the day-to-day challenges of caring for an individual with Alzheimer’s disease or related illnesses find it hard, if not impossible, to leave home to attend support groups or workshops to get the answers to their caregiving questions. For them, a viable alternative is Care Connection—a free telephone support service for caregivers of individuals with dementia sponsored by the Alzheimer’s Foundation of America (AFA) and Ask Dr. Jamie.

The weekly, interactive service is a blend of coaching, presentations by experts and discussion. It links up to 150 caregivers from anywhere in the country for each one-hour session, and is hosted by Jamie Rotnofsky, a psychologist and professional life coach.

Care Connection is held each Thursday night at 9 pm Eastern Time. Caregivers can call in toll-free at 877-232-2992; the guest identification number is 271004#.

Each session addresses medical, social, emotional and practical issues with a dementia specific slant. For example, on June 10, Paulette D. Cranwell, a nurse consultant with TIME OUT Morris View, Morristown, NJ, will discuss ways to decrease hospital admissions. On June 24, G. Allen Power, M.D., will talk about “Dementia Beyond Drugs: Changing the Culture of Care”—the title of his new book.
Care Connection fills a growing need for alternate types of support services, especially for caregivers whose round-the-clock responsibilities prevent them from attending on-site sessions or interacting in person with other caregivers.

“Caregivers need knowledge and support to cope with daily challenges. It’s comforting for them to know that they can get this type of help and peer support without having to leave their living rooms,” said Eric J. Hall, AFA’s president and chief executive officer.

The two organizations opted for a telephone support network versus an Internet chat room, in part to accommodate caregivers who are not computer savvy. Archived sessions, however, are available online.

Ask Dr Jamie is a professional coaching and psychotherapy service that assists individuals and organizations in focusing on doing things differently to achieve real results. Its services include professional education, one-on-one coaching, tele-classes and psychotherapy. For more information, call toll-free 800-927-7930 or visit www.askdrjamie.net.

CONTACT: CAROL STEINBERG

866-AFA-8484 media@alzfdn.org

November 4 , 2009

FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Releases Top Flu Facts for Caregivers of People with Dementia in Light of Additional Care Issues, Complications

NEW YORK , NY —With the flu continuing to spread nationwide, imagine adding the virus into the mix when someone is already coping with a chronic illness like Alzheimer’s disease. In an effort to help families manage this situation, the Alzheimer’s Foundation of America (AFA) today released tips for caregivers of individuals with dementia who believe they or the people they are caring for have the flu.

The strategies take into consideration a person’s diagnosis of Alzheimer’s disease or a related dementia, which can pose additional care issues. AFA posted its top 20 flu facts on the caregiving section of its Web site, www.alzfdn.org.

“Families should minimize possible risk of exposure and prepare for the possibility that their loved ones could contract the virus,” said Richard E. Powers, M.D., chairman of AFA’s Medical Advisory Board and chief of the Bureau of Geriatric Psychiatry, Alabama Department of Mental Health and Mental Retardation.

“Vigilance and early aggressive treatment for the flu are the best plan of action. Good basic home nursing by the family may reduce the adverse impact,” he said.

While people 65 and older—the age group most affected by Alzheimer’s disease—are the least likely to be infected with 2009 H1N1 flu, those who do become infected are at greater risk of having serious complications from their illness, according to the Centers for Disease Control and Prevention (CDC) .

Of utmost importance, Powers, who authored the fact sheet, said individuals need to think about both types of flu—seasonal and H1N1.

“Families should not become so fixated on the H1N1 that they ignore the seasonal flu. The seasonal flu can be equally dangerous in some circumstances if the person is not vaccinated,” he advised.

Among the strategies, caregivers should:

Check their own temperature and the temperature of the person with dementia on a regular basis but remember that persons with dementia may have less fever rise than other individuals.
Remind the individual to drink fluid on a schedule to assure adequate intake.
Keep in mind that some cold medicines that contain diphenhydramine or other decongestants may worsen a person's confusion.
Be prepared that the individual may experience more behavioral problems.
Not take someone to a day program if the flu is suspected or diagnosed.

In addition, Powers offered this advice to caregivers: “Maintain the same devotion and sense of humor towards this challenge like every other challenge in caring for a person with dementia.”

Caregivers also need to be prepared for other disruptions that may arise—even if they or their loved ones do not get sick themselves. For example, adult day programs or in-home services could be disrupted if professional caregivers get the flu.

Noted Eric J. Hall, AFA’s president and chief executive officer: “Family caregivers would be well-served if they have back-up support systems to deal with the practical and emotional ramifications of situations that arise from the flu, as well as other issues that can come up at any time.”

AFA’s social services team is available to discuss behavioral challenges or other situations and to make referrals to local and national resources; for information, call (toll-free) 866-AFA-8484.

According to the CDC’s latest report, 48 states currently are reporting widespread influenza activity, with the 2009 HINI influenza accounting for almost all of the viruses identified so far. Its Web site, www.cdc.gov, lists specific at-risk groups given priority for the vaccine and the availability of the H1N1 and seasonal flu vaccines.

It is estimated that as many as 4.5 million Americans have Alzheimer’s disease, which causes loss of memory and other intellectual functions. With age the greatest known risk factor, the incidence of the disease doubles every five years between 65 and 95.

The Alzheimer’s Foundation of America (AFA) is a national nonprofit organization headquartered in New York and made up of more than 1,200 member organizations nationwide that provide hands-on programs to meet the educational, emotional, practical and social needs of individuals with Alzheimer’s disease and related illnesses, and their families. AFA’s services include a toll-free hot line, counseling, educational materials, a free caregiver magazine and professional training. For information, call (toll-free) 866-AFA-8484 or visit www.alzfdn.org.

CONTACT: CAROL STEINBERG

866-AFA-8484 media@alzfdn.org

October 28, 2009

FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America to Hold National Memory Screening Day During National Alzheimer’s Disease Awareness Month
Actor Hector Elizondo Urges Americans to Get Screened

NEW YORK, NY—As research continues to mount about the effectiveness of memory screenings and the benefits of early detection of memory problems, the Alzheimer’s Foundation of America (AFA) will hold its 7th annual National Memory Screening Day on November 17.

The event coincides with National Alzheimer’s Disease Awareness Month, observed during November.

More than 2,000 sites across the country will offer free, confidential memory screenings and educational materials about memory concerns, successful aging and local resources. The face-to-face screening, conducted by a qualified healthcare professional, takes about five minutes to administer and consists of a series of questions and/or tasks.

Sites include doctor’s offices, senior centers and assisted living facilities, as well as 1,030 Kmart Pharmacy locations nationwide as part of the chain’s GoldK Day.

To locate a screening site, visit www.nationalmemoryscreening.org or call 866-AFA-8484.

AFA believes memory screenings are appropriate for individuals concerned about memory loss or experiencing warning signs of dementia; whose family and friends have noticed changes in them; who believe they are at risk due to a family history of Alzheimer's disease or a related illness; or who want to see how their memory is now and for future comparisons.

“We must break through the enormous stigma and denial about memory problems that still exist today,” said Eric J. Hall, AFA’s president and chief executive officer. “It’s a message that the nation as a whole and aging baby boomers especially need to heed.”

Actor Hector Elizondo, whose mother had Alzheimer’s disease and who is serving as AFA’s honorary celebrity chairman, is also urging Americans to get screened.

“If you have memory concerns, burying your head in the sand doesn’t help you or your family,” Elizondo said. “Screenings are a great starting point to find out what what’s really going on and can lead to the care you might need—and the support your family might need.”

During National Memory Screening Day, screeners emphasize that the test results do not represent a diagnosis and encourage individuals with below-normal scores as well as those who still have concerns to pursue a full medical exam.

Some memory problems can be readily treated, such as those caused by vitamin deficiencies or thyroid problems. Other member problems might result from causes that are not currently reversible, such as Alzheimer's disease.

Warning signs of Alzheimer’s disease include forgetting people’s names and events, asking repetitive questions, loss of verbal or written skills, and confusion over daily routines.

More than 20 professional and trade groups have signed on as supporters of National Memory Screening Day this year, including the American Academy of Neurology, the American Academy of Nurse Practitioners, the American Psychological Association, the National Association of State Units on Aging and the National Council on Aging.

In a report entitled “Memory Matters” released last December, AFA noted that current research supports screening as a “safe, cost-efficient intervention that can reassure the healthy individual, promote successful aging and, when indicated, direct individuals to appropriate clinical resources.”

Sponsors of the 2009 event are Forest Pharmaceuticals, as presenting sponsor; Novartis, silver sponsor; Eisai Inc., Pfizer Inc and Accera, remembrance sponsors; Elan Wyeth, empowerment sponsor; and CogniFit, community sites sponsor.

CONTACT: CAROL STEINBERG

866-AFA-8484 media@alzfdn.org

September 17, 2009

FOR IMMEDIATE RELEASE

Alzheimer’s Foundation of America Applauds Inclusion of Cognitive Screening for Medicare Beneficiaries in Senate Finance Committee Health Reform Proposal

NEW YORK, NY—The Alzheimer’s Foundation of America (AFA) today applauded Senate Finance Committee Chairman Max Baucus (D-MT) and Senator Tom Carper (D-DE), who spearheaded the provision, for including cognitive impairment screening for Medicare beneficiaries in Baucus’ healthcare reform proposal, “America’s Healthy Future Act of 2009.”

AFA had pressed for cognitive screening in light of the escalating incidence of Alzheimer’s disease among aging Americans and mounting evidence that early diagnosis of memory problems is critical to appropriate treatment, behavioral interventions and support services. Early detection of memory problems is one of AFA’s major national initiatives, highlighted by its annual National Memory Screening Day held each November.

“We applaud and thank Senator Carper and Chairman Baucus for their leadership in recognizing the value of cognitive screening and its potential impact on quality of life for older Americans,” said Eric J. Hall, AFA’s president and CEO. “The inclusion of cognitive screenings in Medicare wellness visits will help initiate long overdue and vital discussions about brain health between consumers and healthcare professionals.”

Richard E. Powers, M.D., chairman of AFA’s Medical Advisory Board, said it is noteworthy that the provision for the cognitive screenings, as well as the overall comprehensive health assessment, is framed in the context of disease prevention.

“Being proactive about risk factors and about memory concerns is the only way to attack this public health crisis,” he said. “This is a major step forward toward elevating this issue to the stature deserved by all Americans.”

Baucus’ healthcare proposal, released yesterday as a “Chairman’s Mark,” or recommendation by a committee chair, is scheduled for markup by the Senate Finance Committee on September 22.

The provision for cognitive screening is included in a section on promoting disease prevention and wellness that would give Medicare beneficiaries access to a comprehensive health risk assessment to identify chronic diseases, modifiable risk factors, and emergency or urgent health needs. As part of the annual wellness visit, the proposal states that “optional elements, if appropriate, could include a cognitive impairment screening and administration of or referral for appropriate Medicare-covered immunizations and screening tests, among others.”

All enrolled beneficiaries would be eligible for the wellness visit once every year beginning in 2011, and no co-payment or deductible would apply. Within six months of completing the assessment, Medicare would pay for a visit to a primary care provider to create a personalized prevention plan.

In a report, “Memory Matters,” released last December, AFA underscored the value of memory screenings, noting that current research supports screening as a “safe, cost-efficient intervention that can reassure the healthy individual, promote successful aging and, when indicated, direct individuals to appropriate clinical resources.”

At the time, Hall said the report serves as a “wake up call” to the public and medical professionals, as well as to policymakers.

The proposed inclusion of cognitive screening in the Medicare wellness visit is unfolding as AFA gears up for its National Memory Screening Day on November 17, an annual event that offers free, confidential memory screenings in local communities. Qualified healthcare professionals are expected to administer the non-invasive screenings to tens of thousands of Americans as well as distribute educational materials to countless others at more than 2,000 sites in local communities nationwide.

AFA encourages individuals who are concerned about memory loss, are experiencing warning signs or have a family history of dementia, or want to see how their memory is now and for future comparisons to take advantage of the screenings, which are conducted face-to-face and consist of a series of questions and tasks. The results do not represent a diagnosis, but individuals with below-normal scores or who still have concerns are strongly encouraged to follow up for a full medical examination. For more information, visit www.nationalmemoryscreening.org.

In previous years, surveys of participants in National Memory Screening Day showed that the majority of individuals with memory concerns had not discussed the issue with their physicians despite recent visits.

According to the National Institute on Aging, as many as 4.5 million Americans have Alzheimer’s disease, which causes loss of memory and other intellectual functions. With age the greatest known risk factor, the incidence of the disease doubles every five years between 65 and 95.

The Alzheimer’s Foundation of America is a nonprofit organization based in New York City that focuses on providing optimal care to individuals with Alzheimer’s disease and related illnesses, and their families, and unites 1,200 member organizations nationwide that provide hands-on programs. AFA’s services include a toll-free hot line with counseling by licensed social workers, a free caregiver magazine, a National Memory Screening Day initiative and the AFA Quilt to Remember. For information, call 866-AFA-8484 or visit www.alzfdn.org.

CONTACT: CAROL STEINBERG

866-AFA-8484 media@alzfdn.org

May 6, 2009

Alzheimer’s Foundation of America Lays Out Strategies for Healthy Aging
New Web Site Focuses on Being Proactive, Reducing Risks for Dementia.

NEW YORK, NY — Look at your calendar from the past week: Have you gone for a brisk walk, eaten dark leafy vegetables or toured a museum with a friend?

With growing evidence that these are the types of lifestyle choices that can pay off now and in the future, the Alzheimer’s Foundation of America (AFA) has introduced a new interactive Web site — www.alzprevention.org — that focuses on being proactive about your mental and physical health. It highlights strategies that help promote healthy aging and may reduce the risk for Alzheimer’s disease and related dementias. | read more |

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May 6, 2009

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